My fiancé, Mark, has been dealing with intense swelling and blistering for several years now. It used to be mild and infrequent, but in recent months it is so intense the swelling bursts and leaves scars. It is almost constant now. It has moved into his throat and caused difficulty breathing. We have been to the ER several times and seen countless doctors, but everyone is brushing him off. We want to go to Mayo Clinic in Arizona to get answers, but our insurance is not accepted and the out of pocket cost will be (at a minimum) tens of thousands of dollars.
We have three young children and I’m so scared the swelling will take over and affect his breathing more or his vital organs.
Please only help if you’re in a place where it does not put a strain on you.